Enriching knowledge and enhancing care through health data

Agenda First Hospital Network Workshop

Registration and coffee : Presentation - Name: Short bio
Welcome, introduction to the day and to i~HD Dipak Kalra, President of i~HD
Research horizons for eHealth – research opportunities for hospitals Dirk Colaert, Horizon 2020 SC1 Advisory Board, Belgium
The collaboration of pharma with health systems: co-creating better outcomes Tomas Andersson, Clinical Vice President Cardiovascular/Chronic Kidney Disease, AstraZeneca R&D, Sweden
Reusing health data for research – the patient perspective Katie Gallagher, European Patients Forum Policy Adviser
ECRIN support to multinational trials : the clinical trial data management challenge Jacques Demotes, Director General, European Clinical Research Infrastructure Network (ECRIN), Paris, France
Hospital & Healthcare – visions for the future Pascal Garel, Chief Executive, European Hospital and Healthcare Federation (HOPE), Brussels, Belgium
COFFEE BREAK
Electronic Health Records for research and Hospital management: The “Assisstance Publique - Hôpitaux de Paris” initiative Philippe Lechat, Clinical Pharmacologist, Director Clinical Research and Innovation, Assistance Publique - Hôpitaux de Paris (AP-HP), France
Integration of health records and clinical trials data to advance the efficiency and quality of clinical research Tony Amato, Executive Director, Clinical Trials Center, Policlinico Gemelli, Rome, Italy
Patient-centered hospital: integration of data, traceability , and registries of pathologies in IRCCS Galeazzi Giuseppe Banfi, General Director,
Fondazione Centro San Raffaele, Milan, Italy
Benefits to hospitals from high-quality EHR systems and high-quality health data John O´Brien, former CEO St. James´s Hospital, Ireland
Supporting the trustworthy reuse of health data for research - the role of i~HD Nathan Lea, Senior Research Associate at the UCL Institute of Health Informatics, London, UK
Quality labelling clinical research platforms

Pascal Coorevits, Professor, Ghent University, Vice President for Research, The EuroRec Institute, Ghent, Belgium

Supporting hospitals with data quality improvement Carlos Sáez Silvestre, Biomedical Data Science Lab, Universidad Politècnica de València, Spain
LUNCH

Parallel sessions

INFORMATION GOVERNANCE BREAKOUT GROUP

To present and discuss:
Codes of practice for pharma, hospitals and service providers when reusing health data for research
The Certification of clinical research platforms
The i~HD Information Governance Board

Supporting hospitals with gaining internal approvals for reusing health data for research

 

Facilitated by:

Dipak Kalra, President of i~HD
Nathan Lea, Senior Research Associate at the UCL Institute of Health Informatics, London, UK

 

DATA QUALITY BREAKOUT GROUP

To present and discuss:
The dimensions of data quality that are critical for reliable reuse of EHRs for research
Methods for a hospital to assess its data quality as a way to target improvement strategies
Challenges and success strategies for improving data quality

The value to hospitals from better data quality

 

Facilitated by:

Pascal Coorevits, Professor, Ghent University, Vice President for Research, The EuroRec Institute, Ghent, Belgium
Carlos Sáez Silvestre, Biomedical Data Science Lab, Universidad Politècnica de València, Spain
Veli Stroetmann, Daniel Schmidtmann, Rainer Thiel, empirica, Bonn, Germany 
Diane Whitehouse, Principal eHealth Policy Analyst, European Health Telematics Association (EHTEL), Brussels, Belgium
Murat Sariyar, Bern University of Applied Sciences, Switzerland
Geert Byttebier, Janssen Pharmaceuticals, Belgium
Short summary feedback  
COFFEE BREAK

Panel Discussion:How can hospitals and pharma maximise synergies to improve health outcomes in Europe?

Mats Sundgren (Director & Principal Scientist, AstraZeneca), Sweden
Bart Vannieuwenhuyse (Senior Director Health Information Sciences, Janssen), Belgium
Gareth Milborrow, VP Business Process Improvement, ICON, Dublin, Ireland
Marie Sebille (VP, Global Head Operational Medical Development, Sanofi), Paris, France

Launching the i~HD Hospitals Network of Excellence Dipak Kalra, President of i~HD
Closing dirinks