Patient Organisations

With the rise of data-driven health tools such as wearable devices, remote monitoring, mobile health apps and shared electronic health records, people are more closely connected to tracking their own health.

Having access to our health data, provides the insights to better manage our health. This understanding will give us a stronger voice interacting with our care team to jointly make the best decisions and to define an appropriate care plan taking into account personal priorities.

Being an informed partner in our own care will also boost motivation to carefully follow up on medical instructions and adopt the necessary lifestyle changes.

Moreover, active patient engagement has proven to lead to better health outcomes and better care experiences.

Researchers and clinicians need large quantities of health data to understand disease, its causes, its progression over time, the treatments that have been (un)successful.

The analysis of health data of millions of people helps them to forecast health trends, to speed up diagnosis, to discover new and more effective treatments, medicines and medical technologies, to personalise care, to roll out Artificial Intelligence applications.

The health data susceptible to boost health research has often been routinely collected in electronic health records kept by clinicians, but also in population registries, and more recently through mobile health trackers, bio sensors, etc.

Conversely, patients may be invited to participate in clinical trials for researchers to gather very targeted health data, opening opportunities for patients to get acces to the newest medical advancements.

Hospitals and other healthcare providers are facing the increasingly difficult challenge of delivering high-quality but cost-effective services in an increasingly complex healthcare environment.

Health authorities and funders are forced to ensure sustainable, future proof care strategies, carefully balancing budgets against increasing demands.

The analysis of great quantities of health data can help healthcare providers to improve quality and safety, efficiency and performance, planning and care pathway optimisation.

Public health decision makers can rely on big data analysis to produce evidence for policy and resource planning, for public health surveillance and strategy.