Four colleagues of The European Institute for Innovation through Health Data (i~HD) are giving presentations during the 8th European Conference on Health Law (EAHL 2022). The conference’s theme for this year’s iteration is “Quality of healthcare: Can the law help to guarantee safe and reliable care for the patient?”. This gathering is taking place in Ghent, Belgium (i~HD’s hometown) on the 20th-22nd of April 20222.
i~HD will give insights and trigger discussions on how important the quality of data is in order to improve the quality of care and which role the law should play to facilitate this marriage of the two qualities.
Prof. Dipak Kalra, i~HD President, will kick off the last day of the conference with a keynote entitled “Pressure points between two teutonic plates: GDPR and big health data research.”
“The GDPR demands the highest order safeguarding of the data protection rights of individuals, but this can be in tension with the collective rights of society to receive the best, safest and most advanced healthcare. Modern health research often requires large (=multi-controller) patient numbers and longitudinal (= linked), high fidelity (= difficult to anonymise), data for precision medicine, targeted therapies and AI development. Big (= not easy to minimise) data infrastructures (=no single purpose) proliferating across Europe (= multi-country) consistently face the same GDPR pressure points. i~HD’s mission is to engage with these big data initiatives. We find a strong desire to uphold the GDPR, to respect data subjects and to collaborate with us on finding the best governance approaches (the lava between the plates). This presentation will put the case for scaling up big data research and walk through these pressure points, strategies being piloted and the outstanding challenges.”
-Abstract Prof. Kalra’s keynote
Here is the schedule of the presentations from other i~HD team members:
Thursday, 21 April (10:45am – 12:30pm)
- Maria Christofidou, i~HD Early Stage Researcher
“Health Data: quality and governance”
Secondary use of health data in research: the complexities of EU data governance
- Jens Declerck, i~HD Quality Manager
“High-quality data, a must-have, to support a better quality of healthcare”
Do we need a legal framework to improve the quality of health data?
Friday, 22 April (10:45am – 12:30pm)
- Christophe Maes, i~HD Audit Manager
EU’s first information governance & data privacy for healthcare ICT systems certification
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