i~HD webinar series 2021: GDPR for tomorrow’s health data-driven innovation
How to successfully harness GDPR to meet health data reuse challenges and realise opportunities as the number and scale of health data and research infrastructures across Europe grows.
Health data has the potential to catalyse smarter health care and efficient research . We need to urgently ramp up our learning by creating and combining high-quality health data, and its trustworthy uses.
As a neutral, multi-stakeholder institute The European Institute for Innovation through Health Data strives to maximise community value from health data.
That is why we promote, develop and share good practices and tools and perform quality assessments.
We must learn from health data now to enhance tomorrow’s world
Why we champion better health data re-use: real world examples
Fighting COVID-19 with big data
Finding the best type of blood pressure drug for the prevention of heart attack and stroke
Better clinical decisions based on high-quality health data
Reimbursement for health apps with demonstrated data protection and interoperability
Best colonoscopy practices for earlier diagnosis of bowel cancer
Discover why and how health data is crucial to boost knowledge
Our 6 core work streams
Health data is often not fit for crucial reuse purposes such as clinical research, decision making, value-based health care. We therefore catalyse stakeholders to scale up their data quality, by coaching, educating and equipping them with instruments, organising assessments, providing insights and strategies to benchmark and enhance their health data quality, and providing expert support in all phases of the research lifecycle.
All organisations, and the public, need to trust the ways in which health data is used, and by whom. The General Data Protection Regulation (GDPR) has heightened our awareness of this. We have translated our expertise in data protection for reuse purposes into codes of practices, educational and certification programmes, which we provide to organisations and European projects.
HEALTH ICT SYSTEMS
With more and more health ICT systems collecting and exchanging health data, we see a growing demand to demonstrate the trustworthiness of those systems. Using 1700 criteria and a standardised conformity assessment framework, we assess and certify the quality and governance of health ICT platforms.
Interoperability standards are vital to scaling up health data use, even more so given the rise of patient and citizen generated data. i~HD staff and experts have a long history of developing international health data interoperability standards, and their adoption into products and health ecosystems, connecting clinical information between silos to enable safer and more effective patient care, and big data research.
CERTIFICATES & SEALS
Organisations handling health data want to provide assurance they do so in trustworthy ways. i~HD programmes offer audits for data, ICT systems, information governance and skills. As an independent institute, i~HD is best positioned to award quality labels to stakeholders that showcase their engagement, quality and accountability.
We know that everybody needs to do more, and invest more, in health data through improved models of healthcare delivery, patient empowerment, and the development of innovative diagnostics and treatments. We help to stimulate this multi-stakeholder momentum to collect, curate, share and analyse data across care and research, for the benefit of all.
Let’s create trust
Through our community and programmes, i~HD helps all players in the health data ecosystem by flexing our five muscles.
We convince everyone about the societally-beneficial uses of health data, about the need for high-quality data and how health data can be shared in acceptable ways.
We unite stakeholders within our neutral forum to share needs and expertise, to co-create optimised solutions, to coach each player to assure their quality and increase their trustworthiness.
We create innovative solutions and programmes, practical guides, educational resources and quality labels to support the creation, use, sharing and reuses of health data.
We assess the quality and trustworthy uses of health data and we award successful organisations with seals and certificates.
We catalyse change and improvement through engaging multiple stakeholders in co-creating and then adopting health data usage solutions and programmes, education, peer networks.
Good data has the same value as a new drug! In the future a unique lifesaving decision will be taken for each individual patient on the basis of his own data.
Dr. Paul Stoffels,
Vice Chairman & Chief Scientific Officer Johnson & Johnson
EAHM 2019 Congress in Ghent, 2019