i~HD is a partner in a new European H2O project ‘Health Outcomes Observatory’ to amplify the patient voice within healthcare and research.
H2O is a new five-year project funded through the Innovative Medicines Initiative. Its ambition is to empower patients with digital tools to monitor their outcomes in a standardized manner. Patients can share these data with their physicians and other healthcare providers to facilitate communication in an evidence-based, structured manner. In this way, they will be better able to collaborate with their treating clinicians in making joint healthcare and treatment decisions to obtain the best possible health outcomes.
Additionally, collecting patient-reported outcomes in a standardized way can, when the data are anonymized and aggregated, be used to help health systems learn how to provide the best, most efficient care possible to all patients. Aggregated health outcomes data at a national or European level can be a valuable resource for public health and clinical research.
Additionally, collecting patient-reported outcomes in a standardized way can, when the data are anonymized and aggregated, be used to help health systems learn how to provide the best, most efficient care possible to all patients. Aggregated health outcomes data at a national or European level can be a valuable resource for public health and clinical research.
Integrity and data security
In order to safeguard patients’ health data, the highest level of integrity and data security will be ensured, by only communicating aggregate data and not patient level data, while at the same time enabling greater transparency of outcomes to allow better decision making for both individual patient treatments as well as health system design.
i~HD is delighted to be a work package co-leader working with colleagues especially on the governance model and sustainability of the planned H2O outcomes observatories, on multistakeholder engagement and consensus building, and on information governance including GDPR compliance.
The H2O consortium brings together patient groups and the best of breed health outcomes generation ecosystem in the form of the European University Hospital Alliance, as well as experts in data standards and quality, psychometric methods, federated networks, governance, business modelling and IMI experience.
