Imagine a tomorrow where communities of citizens, industries, health & social care actors, research, cities and public services are joining forces to create a catalysing health-supportive environment. A data-driven environment where all dimensions of health and well-being are being tackled through collaboration, participation and empowerment. Where responsibly shared health Data Saves Lives. Where illness is intercepted early and managed as close to home as possible. Where digital innovation enables citizens to monitor their health through smart medical devices, to self-manage their illness, to gain awareness through gamification.
Who should attend? Health and care professionals, research organisations, pharma, scientific organisations, (health) ICT and start-ups, civic and national authorities, patient organisations, healthdata brokers
Thanks to advances in medical science, people with chronic diseases live longer. Challenges are how to sustain quality independent living for the patient, support caregivers facing an increasing burden and create sustainable healthcare and social care systems with limited resources.
ADLife is a EU Horizon 2020 funded project that aims to provide integrated personalized care for patients with Advanced Chronic Diseases to improve their health and quality of life.
i~HD is delighted to contribute to this exciting and innovative project, more specifically with regards to ethical surveillance, data management, dissemination & communications, and exploitation.
The Consortium of partners who will tackle this challenge are being guided by Kronikgune who organised a brilliant kick off meeting at the end of January 2020.
The project launch was presented in the local Basque Crountry TV, featuring i~HD's president Dipak Kalra.
The General Data Protection Regulation (GDPR) has clear guidelines with regards to data protection. However that doesn’t result in a homogeneous implementation throughout each sector. There’s no need to say that a pharmaceutical company, dealing with loads of data from numerous individuals, obtained via multiple platforms, has lots of obstacles to tackle when it comes to GDPR.
On December 5th, we organized a tailor-made GDPR tutorial in cooperation with UCB.
Under the guidance of Nathan Lea (i~HD Information Governance & GDPR taskforce) and supported by field experts Mariana Rissetto (Department of Innovation and Digitalisation in Law at the University of Vienna), Petra Wilson (Health Connect Partners), Ruben Roex (research group Law & Technology at the University of Ghent) and Brendan Barnes (EFPIA) our i~HD taskforce focused on topics as:
To wrap up the day we had a very interactive panel discussion. We can conclude that accurate accountability and a customized approach are the main keys to tackle GDPR.
We look back on a successful tutorial with very interesting discussions and constructive dialogues. A special thanks to the UCB team including the RWE practice for the warm welcome and pleasant cooperation.
The mission of The European Institute for Innovation through Health Data (i~HD) is to enable, coordinate, and accelerate the efficient development and deployment of interoperable and seamless eHealth solutions and research strategies, towards achieving best practices and sustainable integrated person-centred health care, to optimise health and wellness in Europe, and beyond. It aims to guide and catalyse the best, most efficient and trustworthy uses of health data and interoperability, for optimising health and knowledge discovery.
i~HD has been established to tackle areas of challenge in the successful scaling up of innovations that critically rely on high quality and interoperable health data. It specifically addresses obstacles and opportunities to using health data by collating, developing and promoting best practices in information governance and in semantic interoperability. It is helping to sustain and propagate the results of health information and communication technology (ICT) research that enable better use of health data, assessing and optimising their novel value wherever possible.
i~HD has been formed after wide consultation and engagement of many stakeholders to develop methods, solutions and services that can help to maximise the value obtained by all stakeholders from health data. It supports innovations in health maintenance, health care delivery and in knowledge discovery, while ensuring compliance with all legal prerequisites, especially regarding the insurance of patient’s privacy protection. It unites multiple stakeholder groups to ensure that future solutions serve their collective needs and can be readily adopted affordably and at scale.