Enriching knowledge and enhancing care through health data

Annual Conference 2018

We are delighted to announce that our third annual conference took place in Gothenburg, Sweden on 19-20 November. The multi-stakeholder nature of the participants led to interesting perspectives and discussion on how we are realising the value of health data. This included the value of data in research, with emphasis on pragmatic clinical trials and large scale observational data. We explored how real world data should be better used in decision making. We heard about the emerging importance of patient generated data and the role of Learning Health Systems. This conference provided a foundation for i~HD’s contributing roles. We announced the launch of the Data Quality Service for Hospitals and the GDPR Observatory. A big thank you to all those involved in making this event such a success.


i~HD 2018 Annual Conference in Gothenburg (Sweden) on 19 – 20 November, 2018.

Realising the value of health data, showcasing practical examples from research and healthcare

The conference showcased how routinely collected health data (Real World Data) can be used to derive important knowledge insights, possibly uniquely from large scale data, and how these insights can and should impact on decision making and healthcare strategy.

Sessions have been organised on:

- How is routinely collected health data (Real World Data - RWD) already being used to derive important knowledge insights, possibly uniquely from these data?
- How should Real World Data insights impact on decision making and healthcare strategy?
  • Pragmatic clinical trials - their role, methods and tools, results and impacts
  • International observational health data networks – communities and projects
  • Learning health systems – the global landscape
  • Hospital-led and patient-led initiatives to use health data to improve outcomes
  • A debate on the acceptability conditions for real world evidence - to inform regulatory decision making

Monday 19th morning pre-conference sessions:

  • An in-depth tutorial on the GDPR implications for reusing health data
  • A workshop for health data custodians about the IMI EHDEN federated data network

Conference fee 300€ (50% reduction for i~HD members) for both days including the conference dinner, tutorial and access to the mini-exhibition.

The conference programme can be consulted here.

on behalf of the Programme Committee




  • Keynote speaker: Andrew Roddam, VP & Head Real World Evidence and Epidemiology, GSK
  • Pragmatic clinical trials: their role, methods and results, including results from the IMI GetReal project
  • Observational health data: their tools, platforms and results, including results from the IMI EMIF and ADVANCE projects
  • Showcasing how robust and high-quality evidence has been generated from RWD
  • A panel, to which regulators and HTA are being invited, will debate the acceptability conditions for real world evidence to inform decision making, including regulatory decisions, and product development strategy

Healthcare and Learning Health Systems

  • Keynote speaker: Chuck Friedman, Professor of Learning Health Sciences, University of Michigan; Editor-in-Chief, Learning Health Systems Journal
  • Improvements in the quality of care and improved health outcomes from using routinely collected data
  • Bringing benefits to patients through greater access to health data
  • Showcasing the use of health data to measure outcomes and improve health for patients


  • Data quality assessment and improvement
  • Information governance and the GDPR
  • Promoting public awareness about the value of research
  • Network dinner
  • Mini-exhibition


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Pascal Coorevits

Ghent University,
Vice President for Research


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Mitchell Silva

patient advocate,
co-founder of Esperity


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Chuck Friedman

Chair of the Department of Learning Health Sciences, University of Michigan


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Mats Sundgren

Health Informatics Director, AstraZeneca


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Published on: 09 July 2018