Annual Conference 2018
Enriching knowledge and enhancing care through health data

Conference programme

Programme

Monday 19th November

Pre-conference sessions
IMI EHDEN workshop Nigel Hughes, Scientific Director, Janssen Clinical Innovation
Peter Rijnbeek, Assistant Professor, Erasmus Medical Center Rotterdam
Tutorial on GDPR Nathan Lea, i~HD GDPR Task Force lead, Senior Research Associate, UCL Institute of Health Informatics, London
Peter Singleton, Cambridge Health Informatics
Nikolaus Forgó, University of Vienna
Brendan Barnes, EFPIA
Mitchell Silva, patient advocate, co-founder of Esperity
Main conference programme: day one
12.00-13.30 Buffet lunch, networking Opportunity to view the exhibition area
Welcome to the conference and introduction to i~HD Dipak Kalra: President of i~HD
Realising the value of health data for research
Theme: Pragmatic Clinical Trials
Session chairman: Gurparkash Singh, Janssen R&D
 

Opening keynote:
The role of the Pragmatic Clinical Trial in industry decision-making

Andrew Roddam, VP & Head Real World Evidence and Epidemiology, GSK
  Pragmatic Clinical Trials: Real World Evidence’s Hidden Gem Mats Sundgren, Health Informatics Director, AstraZeneca
  The IMI GetReal Toolbox for incorporating PCTs into effectiveness planning Rob Thwaites, Senior Director, Global Outcomes Research, Takeda
  The challenges of data quality and completeness in randomised trials (pragmatic or conventional).  Is data harmonisation the answer? Tjeerd van Staa, Professor of Health eResearch, University of Manchester
  Registry based pragmatic randomized controlled trials for nationwide evaluations of health care intervention Heiner Bucher, Director, Basel Institute for Clinical Epidemiology & Biostatistics
  Speakers panel discussion Audience led Q&A with the speakers
15.45-16.15 Coffee and networking Opportunity to view the exhibition area
Realising the value of health data for research
Theme: Observational Health Data
Session chairman: John Wise, Pistoia Alliance
  The Observational Health Data Sciences and Informatics (OHDSI) Initiative Peter Rijnbeek, Assistant Professor, Erasmus Medical Center Rotterdam
  Transforming big health data into evidence to support vaccine benefit and risk monitoring: examples from the IMI-ADVANCE project Miriam Sturkenboom, Associate Professor in Global Health, University Medical Center Utrecht
  From EMIF to EHDEN: scaling up the big data ecosystem across Europe Nigel Hughes, Scientific Director, Janssen Clinical Innovation
  Creating digital patients

Julian Isla, President & Co-founder Foundation 29

  Swelife / Sweper project – a Swedish national initiative to support the usage of systematic health data in personalized medicine Lars Lindsköld , Portfolio manager Sweper a part of Swelife
  Speakers panel discussion Audience led Q&A with the speakers
Challenging the hierarchy of evidence Robert vander Stichele ,Professor of Clinical Pharmacology, Ghent University
18.00-18.30 Enjoy a glass of wine Opportunity to view the exhibition area
19.00 Dinner: all registered delegates are warmly invited Gothia Towers

 

Tuesday 20th November

Main conference programme: day two
Opening welcome, introduction to the day and to the Panel Debate Dipak Kalra, President of i~HD
Panel debate:
The acceptance of Real World Evidence in decision making

Moderator: Dipak Kalra
Panelists:
Tomas Andersson, Clinical Vice President,  Cardiovascular/Chronic Kidney Disease, AstraZeneca R&D
Julian Isla, Foundation 29 and EMA
Wim Goettsch, Special Advisor HTA, Zorginstituut Nederland (ZIN)
Miriam Sturkenboom, Associate Professor in Global Health, University Medical Center Utrecht

Realising the value of health data for Learning Health Systems
Session chairman: Georges De Moor, Professor Medical Informatics, Ghent University
 

Opening keynote:
The global landscape of Learning Health Systems

Chuck Friedman, Josiah Macy Jr. Professor of Medical Education and Chair of the Department of Learning Health Sciences, University of Michigan
11.00-11.30 Coffee and networking Opportunity to view the exhibition area
  Bringing the value of health data to patients Kaisa Immonen, Director of Policy, European Patients’ Forum
  Improving health outcomes through health data Rosna Mortuza, Director of Implementation, International Consortium for Health Outcomes Measurement (ICHOM)
  Evaluation of a learning health care system in action: the example of Connected Health Cities in
the North of England
Stephanie Steels, Research Associate, Connected Health Cities
  Data management - A necessity for patients Hanna Svensson, patient advocate and representative
  Experience and practical examples from utilising electronic health records in research Juuso Blomster, Chief Physician, Turku University Hospital
12.45-13.45 Lunch + networking Opportunity to view the exhibition area

Panel debate:
How can we engage and serve patients through co-creation of value from their data, and grow their trust and confidence?

Main speakers from the morning session
i~HD Task Forces at work!
  The i~HD Observatory and guidance on the GDPR Nathan Lea, i~HD GDPR Task Force lead, Senior Research Associate, UCL Institute of Health Informatics, London
  Launch of the i~HD Data Quality service for hospitals Pascal Coorevits, i~HD Data Quality Task Force lead, Professor of Medical Informatics and Statistics, Ghent University
Carlos Sáez, Senior Researcher, Universitat Politècnica de València
  Assessing the quality of heart failure outcomes data at the Hospital del Mar, Barcelona Miguel-Angel Mayer, Associate Professor in Biomedical Informatics,  Pompeu Fabra University, Barcelona
Marta Durá-Hernández, Scientific Manager, Universitat Politècnica de València
  Using the instrumentarium of prescribing audit to check the quality of data in primary care Robert vander Stichele, Professor of Clinical Pharmacology, Ghent University
Summing up, and the future ambitions of i~HD Dipak Kalra, President of i~HD
15.40 Coffee and close Opportunity to view the exhibition area
Published on: 26 September 2018