Enriching knowledge and enhancing care through health data
The importance of good EHRs for Learning Health Systems
Speaker: Dipak Kalra, i~HD
This presentation will portray the many opportunities for hospitals and health care systems to learn from routinely collected health data. Dipak will explain the Learning Health System concept and its global movement, and how better use of health data can deliver value to hospitals, healthcare systems and to patients.
Assessing the data quality of hospital EHRs
Speaker: Pascal Coorevits, Professor of Medical Informatics and Statistics, Ghent University
An important success factor for the reuse of hospital EHRs for research is the quality of the data. This presentation will summarise state-of-the-art research in the dimensions of data quality that are most important for organizational learning and research, and the methods for assessing the quality of the data. A case study of a recent data quality assessment in heart failure undertaken at a hospital in Spain will be presented. Pascal will introduce the i~HD data quality service that is available to European hospitals.
The value of Real World Evidence to Pharma
Speaker: Bart Vannieuwenhuyse, Senior Director Health Information Sciences, Janssen
Bart Vannieuwenhuyse will introduce the audience to the many ways in which the pharma industry is analysing routinely collected data from hospitals to improve the design of clinical trials, to assist hospitals with faster recruitment of the most suitable patients, exchanging data between EHR systems and clinical research systems. The big data landscape is becoming more and more important for clinical research, and Bart will present the work of IMI projects that are scaling up health data availability across Europe.
Establishing a trustworthy data reuse framework
Speaker: Dr Nathan Lea, Senior Research Associate, UCL Institute of Health Informatics, London
The main data protection and ethical issues that have to be addressed by any solutions that re-use electronic health records for learning, including GDPR compliance, will be outlined. Nathan will also explain the other governance instruments that are needed to create a trustworthy ecosystem, to give confidence to hospitals, their patients, and to research users such as the pharma industry.
A case study example of a successfully deployed clinical research platform that reuses EHR data to support research
Speaker: Dr Luc De Keyser, Chief Medical Officer, InSite
Let’s wrap up by describing the information flows implemented by Custodix within their clinical research platform, and explain how it has been possible to design the platform and its connection to European hospitals in full compliance with the GDPR. The value of using such a platform for clinical research and for hospital quality improvement will be outlines, and flow into the panel discussion.
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Due to the large number of events in September 2017, the hotel capacity in Madrid will be extremely limited. For your convenience, i~HD was able to block a large number of rooms (two nights, check in on 20/9; check-out on 22/9) at a special rate (165 Euro / night, breakfast incl.) in the Novotel hotel Madrid Center, only 11 km from the airport.
In case you wish to take up this offer, please be so kind to mention this in the registration form and transfer the amount 330€ (two nights) to i~HD’s bank account (bank details see below).
The hotel Reservation will then be handled by us once we receive the amount on our bank account.
The discounted room rates can only be reserved by bank transfer, not by credit card.
The room reservation will be confirmed in writing (by email) along with a PDF receipt.
First come (paid) first served.
May we kindly remind you that participation in the conference is for free.
i~HD Bank details
| Account Number: | BE22 001758896047 |
| BIC Code | GEBABEBB |
| Name of bank: | BNP PARIBAS FORTIS |
| Address of bank: | De Plaats 9 9910 KNESSELARE Belgium |
| Please add as reference: | AC2017 Hotel - first and family name |
The entirely renovated 4-star hotel NOVOTEL MADRID CENTER is located in the elegant Salamanca district, a 5 minute walk from the Retiro park and 11km from the airport. The hotel is easy to reach with the airportbus (24/7, about 5 Euro) and close to the O'Donnell metro station allowing easy connection with the Hospital Universitario 12 de Octubre where the conference takes place.
Some Recent Reviews (Source: Tripadvisor):
Hotel Novotel Madrid Center
Calle de O’Donnell 53 - 28009 MADRID SPAIN
Coordinates GPS: N 40° 25′ 17.82” W 3° 40′ 19.80”
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i~HD retains the data as long as you are a member, and should your membership end, i~HD retains it for legal obligation under Article 6(1)(c) of GDPR for audit purposes pursuant to Belgian Law.
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When registering to attend an i~HD event via our website or directly with our offices, we ask for your title, first and last names, your function in your company or institution, email address, the company or institution you belong to, your role and the country you are based in. We ask you to select which of our core stakeholder groups you belong to. Furthermore, we ask you to provide us with your dietary preferences and any specific needs to cater for your attendance at our events. We do not ask for any other details, personal or otherwise.
When registering, i~HD processes your personal data to manage your attendance at our event with your explicit consent as a legal basis under Article 6(1)(a) of GDPR.
Once you have registered, we do not add you to a published attendance list unless we have obtained your explicit consent to do so under Article 6(1)(a) of GDPR.
i~HD retains your personal data to fulfil the purpose of managing your attendance at our event and for audit purposes after the event under Article 6(1)(c) of GDPR for legal obligation.
i~HD will add you to our contact list if you are not already on it to keep you informed of newsletters, further events and updates to i~HD’s services. You are able to unsubscribe from this list at any point at your convenience by going to our website to unsubscribe or asking that we remove you by contacting our offices as detailed in the first section.
Where you have agreed to be a speaker, we process your personal data on our website to publicise our events and to share updates about the event once it has finished. The data we share will be your full name, your organisation, title, function, a photograph and a short bio that you will provide us.
We process this personal data for the purposes of publicising the event and delivering it. The legal basis under GDPR is Article 6(1)(f) where in agreeing to be a speaker, i~HD has identified that it is in its and your legitimate interests for us to process the data for these purposes. You may of course object to or restrict this processing (as described in the rights section below) and if you prefer us to remove your personal data from the website or refrain from using it in newsletters, we will honour your rights as defined in GDPR to the fullest extent.
Should you decide to withdraw as a speaker prior to the event, we will destroy the personal data and if you prefer we withhold any of the data from the website we will of course refrain from putting it there.
Our events are recorded either through the filming of speakers, panels and audience members, audio recording or photograph for the purposes of updating our members and the wider public about our event. Under GDPR Article 6(1)(a) we seek the explicit consent from any participants that we record in any way for this specific purpose.
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You may withdraw your consent for the recording and as soon as you do, we will remove the recording from public display immediately and provided we do not have to retain it under other legal obligation, destroy it without the need for any explanation from you at all. We cannot however remove names of speakers or panellists from a past agenda or meeting report as documenting a past fact where these are provided on our websites under events.
Where you have agreed to become a member of one of our task forces, we will share your name, organisation, title, function, photo and a short bio on the relevant website pages and in our newsletters. Where you are a member of our core team, we will share personal data including your name, a short bio title, function, photo and email address on our website and newsletters.
In both cases, we will do this under Article 6(1)(f) where i~HD has identified that it is in both its and your legitimate interests to publicise this on the website and in newsletters. You may of course object to or restrict this processing (as described in the rights section below) and if you prefer us to remove your personal data from the website or refrain from using it in newsletters, we will honour your rights as defined in GDPR to the fullest extent.
When you contact us either from our contact screen or directly, we will process your personal data for the purposes of handling the reason for your contacting us.
Where your reason for contacting us is about your existing membership i~HD will handle your personal data under Article 6(1)(b) for the performance of a contract or its preparation.
If your query is general or with regards your rights under GDPR, this will be with your explicit consent under Article 6(1)(a) of GDPR. We will retain a record of your query for one year for audit purposes. We will also add your contact details to our contact list but only if you explicitly consent to this in accordance with Article 6(1)(a) of GDPR.
At all times, GDPR gives you the following rights which we will of course honour in full compliance with its provisions:
Please send an email to Geert Thienpont at xxx.i-hd.eu to exercise any of your rights. i~HD must confirm your identity and will review your request to ensure that it can be honoured without compromising other legal requirements and pursuant to the limitations provided by GDPR. We aim to have replied within 30 days of your request except where you have withdrawn your consent, which shall be actioned immediately.
You may also write to the following address:
The European Institute for Innovation through Health Data (i~HD)
c/o Dept. Medical Informatics & Statistics
Ghent University Hospital
Building 5K3, 5th floor
Entrance 42
C.Heymanslaan 10
9000 Gent
Belgium
Please note that you always have the right to lodge a complaint with the Belgian Privacy Commission at commission@privacycommission.be should you be unhappy with how we have handled your requests or any of your personal data.
If we substantially change how we process your data (for example using a new tool or service provider) we will undertake a Data Protection Impact Assessment pursuant to GDPR Article 35. This would be the case if we identify that any changes require significant additional processing of your personal data and / or risks to your rights and freedoms.
Where we identify a clear need to update this notice we will inform you immediately.
Last updated 4th June 2018
