Enriching knowledge and enhancing care through health data

Abstract of i~HD presentations

The importance of good EHRs for Learning Health Systems
Speaker: Dipak Kalra, i~HD 

This presentation will portray the many opportunities for hospitals and health care systems to learn from routinely collected health data. Dipak will explain the Learning Health System concept and its global movement, and how better use of health data can deliver value to hospitals, healthcare systems and to patients.


Assessing the data quality of hospital EHRs
Speaker: Pascal Coorevits, Professor of Medical Informatics and Statistics, Ghent University

An important success factor for the reuse of hospital EHRs for research is the quality of the data. This presentation will summarise state-of-the-art research in the dimensions of data quality that are most important for organizational learning and research, and the methods for assessing the quality of the data. A case study of a recent data quality assessment in heart failure undertaken at a hospital in Spain will be presented. Pascal will introduce the i~HD data quality service that is available to European hospitals.


The value of Real World Evidence to Pharma
Speaker: Bart Vannieuwenhuyse, Senior Director Health Information Sciences, Janssen

Bart Vannieuwenhuyse will introduce the audience to the many ways in which the pharma industry is analysing routinely collected data from hospitals to improve the design of clinical trials, to assist hospitals with faster recruitment of the most suitable patients, exchanging data between EHR systems and clinical research systems. The big data landscape is becoming more and more important for clinical research, and Bart will present the work of IMI projects that are scaling up health data availability across Europe.


Establishing a trustworthy data reuse framework
Speaker: Dr Nathan Lea, Senior Research Associate, UCL Institute of Health Informatics, London

The main data protection and ethical issues that have to be addressed by any solutions that re-use electronic health records for learning, including GDPR compliance, will be outlined. Nathan will also explain the other governance instruments that are needed to create a trustworthy ecosystem, to give confidence to hospitals, their patients, and to research users such as the pharma industry.


A case study example of a successfully deployed clinical research platform that reuses EHR data to support research
Speaker: Dr Luc De Keyser, Chief Medical Officer, InSite

Let’s wrap up by describing the information flows implemented by Custodix within their clinical research platform, and explain how it has been possible to design the platform and its connection to European hospitals in full compliance with the GDPR. The value of using such a platform for clinical research and for hospital quality improvement will be outlines, and flow into the panel discussion.