Enriching knowledge and enhancing care through health data
Journal Articles and Book Chapters
A. Anil Sinaci, Gokce B. Laleci Erturkmen, Suat Gonul, Mustafa Yuksel, Paolo Invernizzi, Bharat Thakrar, Anil Pacaci, H. Alper Cinar and Nihan Kesim Cicekli. Post Marketing Safety Study Tool: A web based, dynamic and interoperable system for postmarketing drug surveillance studies, BioMed Research International, Special Issue "Improving Performance of Clinical Research: Development and Interest of Electronic Health Records". Accepted for publication in May 2015
Mustafa Yuksel, Suat Gonul, Gokce Banu Laleci Erturkmen, Ali Anil Sinaci, Kristof Depraetere, Jos De Roo and Tomas Bergvall. A Semantic Interoperability Framework for Reinforcing Post Market Safety Studies, BioMed Research International, Special Issue "Knowledge Engineering Methods and Applications in Pharmacovigilance". Submitted for publication
Sajjad Hussain, Hong Sun, Mustafa Yuksel, Gokce B. Laleci Erturkmen, Charles Mead, Alasdair J. G. Gray, Kerstin Forsberg. A Justification-based Semantic Framework for Representing, Evaluating and Utilizing Terminology Mappings, Journal on Data Semantics. Submitted for publication
Gokce Banu Laleci Erturkmen, Landen Bain, Anil Sinaci, Frederik Malfait, Geoff Low, keyCRF: Using Semantic Metadata Registries to Populate an eCRF with EHR Data, 13th International Semantic Web Conference – Industry Track, October 2014.
Elif Eryilmaz, Gokce B. Laleci Erturkmen, Security and Privacy Issues for enabling the Secondary use of EHRs in Clinical Research, MedeTel 2013 Conference - Luxemburg, April 2013.
Christel Daniel, Gokce Banu Laleci Erturkmen, Ali Anil Sinaci, Brendan C Delaney, Vasa Curcin, Landen Bain, Standard-based integration profiles for clinical research and patient safety, Panel in CRI 2013, AMIA Clinical Research Informatics meeting (San Francisco, March 2013).
Gokce B. Laleci Erturkmen, Asuman Dogac, Mustafa Yuksel, Sajjad Hussain, Gunnar Declerck, Christel Daniel, Hong Sun, Kristof Depraetere, Dirk Colaert, Jos Devlies, Tobias Krahn, Bharat Thakrar, Gerard Freriks, Tomas Bergvall, Ali Anil Sinaci, Building the Semantic Interoperability Architecture Enabling Sustainable Proactive Post Market Safety Studies, SIMI 2012 Wokshop (Semantic Interoperability in Medical Informatics), in ESCW 2012: Extended Semantic Web Conference, May 27, 2012 in Heraklion (Crete), Greece.
To make this site work properly, we sometimes place small data files called cookies on your device. Most big websites do this too.
What are cookies?
A cookie is a small text file that a website saves onyour computer or mobile device when you visit the site. It enables the website to remember your actions and preferences (such as login, language, font size and other display preferences) over a period of time, so you don't have to keep re-entering them whenever you come back to the site or browse from one page to another.
your display preferences, such as contrast colour settings or font size
if you have already replied to a survey pop-up that asks you if the content was helpful or not (so you won't be asked again)
Also, some videos embedded in our pages use a cookie to anonymously gather statistics on how you got there and what videos you visited.
Enabling these cookies is not strictly necessary for the website to work but it will provide you with a better browsing experience. You can delete or block these cookies, but if you do that some features of this site may not work as intended.
The cookie-related information is not used to identify you personally and the pattern data is fully under our control. These cookies are not used for any purpose other than those described here.
Do we use other cookies?
Some of our pages or subsites may use additional or different cookies to the ones described above. If so, the details of these will be provided in their specific cookies notice page. You may be asked for your agreement to store these cookies.
How to control cookies
You can control and/or delete cookies as you wish - for details, see aboutcookies.org. You can delete all cookies that are already on your computer and you can set most browsers to prevent them from being placed. If you do this, however, you may have to manually adjust some preferences every time you visit a site and some services and functionalities may not work.
This web site (www.i-HD.eu) and its content is owned by i~HD.
The information published in this site is intended for all stakeholders with an interest in innovation through Health Data.
Any use, redistribution, or reproduction of any materials herein, in part or in whole, without express written consent from
i~HD is strictly prohibited. Some sections of the this website request specific
information from the visitor. Information which may be collected from this site through questionnaires, feedback forms, or other means, enables
i~HD to determine the visitors interests, with as goal providing better service.
i~HD will protect your information in consistency with applicable legislation.
i~HD may provide links to web pages which are not part of the
i~HD web sites (*.i-HD.eu). These sites are not under
i~HD control and
i~HD is therefore not responsible for such information or links.
i~HD Hotel Offer
Due to the large number of events in September 2017, the hotel capacity in Madrid will be extremely limited. For your convenience, i~HD was able to block a large number of rooms (two nights, check in on 20/9; check-out on 22/9) at a special rate (165 Euro / night, breakfast incl.) in the Novotel hotel Madrid Center, only 11 km from the airport.
Location of the conference dinner on Thursday 21st
will be organised in the Novotel hotel Madrid Center (i~HD hotel offer) where most of the participants will stay
offered by the Organising Committee
all attendees are welcome
In case you wish to take up this offer, please be so kind to mention this in the registration form and transfer the amount 330€ (two nights) to i~HD’s bank account (bank details see below).
The hotel Reservation will then be handled by us once we receive the amount on our bank account.
The discounted room rates can only be reserved by bank transfer, not by credit card.
The room reservation will be confirmed in writing (by email) along with a PDF receipt.
First come (paid) first served.
May we kindly remind you that participation in the conference is for free.
i~HD Bank details
Name of bank:
BNP PARIBAS FORTIS
Address of bank:
De Plaats 9 9910 KNESSELARE
Please add as reference:
AC2017 Hotel - first and family name
Information about the hotel NOVOTEL MADRID CENTER:
The entirely renovated 4-star hotel NOVOTEL MADRID CENTER is located in the elegant Salamanca district, a 5 minute walk from the Retiro park and 11km from the airport. The hotel is easy to reach with the airportbus (24/7, about 5 Euro) and close to the O'Donnell metro station allowing easy connection with the Hospital Universitario 12 de Octubre where the conference takes place.
Some Recent Reviews (Source: Tripadvisor):
A spacious and modern hotel, great for business travellers and away from the tourist hustle and bustle if you want a quiet base to enjoy the city from.
Breakfast - incredible selection. A sprawling buffet with a huge choice of hot/cold foods, plenty of drink choices including champagne and smoothies made right before your eyes.
Location - fairly quiet but taxi's ready and waiting to whisk you off. O'Donnell metro just a minutes walk away and Goya Metro around 5 minutes walk.
There are some bars and cafes surrounding the hotel and as you'll discover with Madrid, there's somewhere serving incredible tapas on pretty much every street.
Lovely helpful staff throughout the hotel.
The rooms are high end and sophisticated.
Pleasant, helpful personnel that spoke English.
Hotel Novotel Madrid Center
Calle de O’Donnell 53 - 28009 MADRID SPAIN
Coordinates GPS: N 40° 25′ 17.82” W 3° 40′ 19.80”
Data Protection Transparency and Privacy Notice
i~HD processes personal data on its website to fulfil its purposes as a not for profit association for promoting innovations in health care. i~HD regards its protection of our members and interested parties with the highest priority and applies all possible effort to comply in full with the European Union General Data Protection Regulation (GDPR) and all other applicable laws.
As a not-for-profit member association, i~HD is both a data controller and data processor to fulfil its purposes, which are described in detail throughout this notice. To manage the services we offer, RAMIT VZW hosts our website server and handle the corporate systems for email and customer relationship management.
If you have any queries about i~HD’s personal data processing activities or about the exercising of your rights under GDPR please contact Geert Thienpont at email@example.com.
When does i~HD process personal data?
There are seven core activities where your personal data is processed on this website which we describe in this notice:
visiting our website;
registering as a member;
registering to receive our newsletter, event invitations and updates to our services and activities;
registering to attend our events and the subsequent management of the events that you attend;
sharing updates about our events, including speaker details, videos of presentations, photographs and interviews;
details about our task force and core team members;
in handling any queries that you may have about i~HD, its work or any other matters you may wish to discuss with us.
i~HD does not share your personal data between our members, or any attendee of our events or visitors to our website beyond what we have specified in this notice.
In each case, we retain the data for as long as we need to fulfil the above purposes of its processing and any legal obligations where we are required to handle and retain the data.
Visiting our Website
i~HD uses Google Analytics to help us improve our website by informing us which countries visitors are viewing the website from and which pages are of most interest to them. Google Analytics processes a visitor’s IP Address to provide i~HD this information.
Where you have registered to use the features of the website, the personal data that is processed by the cookies includes your login details if you decide to accept cookies and to remain logged in, where you have been granted access to register on the site.
Registering as a Member of i~HD
When registering as a Member of i~HD via our website, we ask for your first and last names, your function in your company or institution, email address, the company or institution you belong to and the country in which you are based. We ask you to select which of our core stakeholder groups you belong to. We also ask you for your title, but this is optional.
The processing of personal data for registration is needed for performance of a contract or its preparation and is covered as a legal basis under Article 6(1)(b) of GDPR.
i~HD retains the data as long as you are a member, and should your membership end, i~HD retains it for legal obligation under Article 6(1)(c) of GDPR for audit purposes pursuant to Belgian Law.
Registering to receive newsletters, event invitations and updates to our services
When registering for our newsletter, event invitations and updates to our services via our website or directly with our offices, we ask for your first and last names, your function in your company or institution, email address, the company or institution you belong to and the country you are based in. We ask you to select which of our core stakeholder groups you belong to. We also ask you for your title, but this is optional. We do not ask for any other details, personal or otherwise.
Consent under Article 6(1)(a) is the legal basis under which i~HD processes your data to register you for these updates. If you wish to stop receiving communications from i~HD, you are always able to unsubscribe here. In that event, we will delete you from our contact list and you will not be contacted again.
i~HD does not retain your contact details unless you have otherwise shared your details with us for the other purposes we outline in this notice or where a legal obligation must be met under Article 6(1)(c) of GDPR. You may always re-register to receive newsletters should you change your mind and wish to hear from us again.
Registering to attend an i~HD event and subsequent management of that event
When registering to attend an i~HD event via our website or directly with our offices, we ask for your title, first and last names, your function in your company or institution, email address, the company or institution you belong to, your role and the country you are based in. We ask you to select which of our core stakeholder groups you belong to. Furthermore, we ask you to provide us with your dietary preferences and any specific needs to cater for your attendance at our events. We do not ask for any other details, personal or otherwise.
When registering, i~HD processes your personal data to manage your attendance at our event with your explicit consent as a legal basis under Article 6(1)(a) of GDPR.
Once you have registered, we do not add you to a published attendance list unless we have obtained your explicit consent to do so under Article 6(1)(a) of GDPR.
i~HD retains your personal data to fulfil the purpose of managing your attendance at our event and for audit purposes after the event under Article 6(1)(c) of GDPR for legal obligation.
i~HD will add you to our contact list if you are not already on it to keep you informed of newsletters, further events and updates to i~HD’s services. You are able to unsubscribe from this list at any point at your convenience by going to our website to unsubscribe or asking that we remove you by contacting our offices as detailed in the first section.
Sharing Updates about our Events
Where you have agreed to be a speaker, we process your personal data on our website to publicise our events and to share updates about the event once it has finished. The data we share will be your full name, your organisation, title, function, a photograph and a short bio that you will provide us.
We process this personal data for the purposes of publicising the event and delivering it. The legal basis under GDPR is Article 6(1)(f) where in agreeing to be a speaker, i~HD has identified that it is in its and your legitimate interests for us to process the data for these purposes. You may of course object to or restrict this processing (as described in the rights section below) and if you prefer us to remove your personal data from the website or refrain from using it in newsletters, we will honour your rights as defined in GDPR to the fullest extent.
Should you decide to withdraw as a speaker prior to the event, we will destroy the personal data and if you prefer we withhold any of the data from the website we will of course refrain from putting it there.
Our events are recorded either through the filming of speakers, panels and audience members, audio recording or photograph for the purposes of updating our members and the wider public about our event. Under GDPR Article 6(1)(a) we seek the explicit consent from any participants that we record in any way for this specific purpose.
The consent is entirely freely given and you are free to grant it or not as you see fit without any impact on your participation in the event.
You may withdraw your consent for the recording and as soon as you do, we will remove the recording from public display immediately and provided we do not have to retain it under other legal obligation, destroy it without the need for any explanation from you at all. We cannot however remove names of speakers or panellists from a past agenda or meeting report as documenting a past fact where these are provided on our websites under events.
Details of our task force members and core team members
Where you have agreed to become a member of one of our task forces, we will share your name, organisation, title, function, photo and a short bio on the relevant website pages and in our newsletters. Where you are a member of our core team, we will share personal data including your name, a short bio title, function, photo and email address on our website and newsletters.
In both cases, we will do this under Article 6(1)(f) where i~HD has identified that it is in both its and your legitimate interests to publicise this on the website and in newsletters.
You may of course object to or restrict this processing (as described in the rights section below) and if you prefer us to remove your personal data from the website or refrain from using it in newsletters, we will honour your rights as defined in GDPR to the fullest extent.
Handling communications from you about i~HD
When you contact us either from our contact screen or directly, we will process your personal data for the purposes of handling the reason for your contacting us.
Where your reason for contacting us is about your existing membership i~HD will handle your personal data under Article 6(1)(b) for the performance of a contract or its preparation.
If your query is general or with regards your rights under GDPR, this will be with your explicit consent under Article 6(1)(a) of GDPR. We will retain a record of your query for one year for audit purposes. We will also add your contact details to our contact list but only if you explicitly consent to this in accordance with Article 6(1)(a) of GDPR.
What are my rights?
At all times, GDPR gives you the following rights which we will of course honour in full compliance with its provisions:
the right to request access to any of your personal data that i~HD processes;
the right to data portability where you can request a digital copy of the data for your own uses;
the right to the rectification (correction) of your personal data where it is incorrect;
the right to request erasure of your data as outlined by GDPR;
the right to restriction of processing by i~HD including where you identify and raise a problem with the data processing until the problem is resolved;
the right to object at any time to processing of your personal data including that which is based on Article 6(1) (f) of GDPR where we have identified a legitimate interest.
Where the processing of your personal data is based on your consent, you can withdraw your consent at any time and without any reason. Withdrawing your consent means that i~HD will not make use of your data any longer for the purposes that you consented to. This does not invalidate past uses of your personal data for which you gave consent and your personal data will continue to be processed in the event of any legal obligations that i~HD must meet.
Please send an email to Geert Thienpont at xxx.i-hd.eu to exercise any of your rights. i~HD must confirm your identity and will review your request to ensure that it can be honoured without compromising other legal requirements and pursuant to the limitations provided by GDPR. We aim to have replied within 30 days of your request except where you have withdrawn your consent, which shall be actioned immediately.
You may also write to the following address:
The European Institute for Innovation through Health Data (i~HD)
c/o Dept. Medical Informatics & Statistics
Ghent University Hospital
Please note that you always have the right to lodge a complaint with the Belgian Privacy Commission at firstname.lastname@example.org should you be unhappy with how we have handled your requests or any of your personal data.
Updates to how we process data and this notice
If we substantially change how we process your data (for example using a new tool or service provider) we will undertake a Data Protection Impact Assessment pursuant to GDPR Article 35. This would be the case if we identify that any changes require significant additional processing of your personal data and / or risks to your rights and freedoms.
Where we identify a clear need to update this notice we will inform you immediately.
Last updated 4th June 2018
The European Health Data & Evidence Network (EHDEN)
The European Health Data & Evidence Network (EHDEN) is a proposed IMI project working to:
Develop FAIR infrastructure in Europe for real world research with 21st century tools, within a federated network, community and ecosystem, with privacy by design
Collaborate with OHDSI in utilising the OMOP common data model, creating a marketplace for certified/qualified SMEs to map data sources reproducibly, supported by a harmonisation fund
Support evidence generation via use cases in collaboration with key stakeholders to demonstrate the efficacy of the EHDEN EU framework and support sustainability for all who wish to work with real world data
EHDEN is envisaged to start prior to the end of 2018 for five years, supported by an IMI grant, currently under negotiation