i~HD webinars 2021: GDPR for tomorrow’s health data-driven innovation

​How to successfully harness GDPR to meet health data reuse challenges and realise opportunities as the number and scale of health data and research infrastructures across Europe grows​.

Our partnership with ECHAlliance continues in 2021

Following our two Round Tables last autumn, attendees were able to create 7 Calls to Action on Health Data Ecosystems. A new report has also been made available, it presents the findings of a multi-stakeholder round table consultation that examines the acceptance criteria for societal trust in the use of health data. hheA .

Health data has the potential to catalyse smarter health care and efficient research . We need to urgently ramp up our learning by creating and combining high-quality health data, and its trustworthy uses.

As a neutral, multi-stakeholder institute The European Institute for Innovation through Health Data strives to maximise community value from health data.

That is why we promote, develop and share good practices and tools and perform quality assessments.

We must learn from health data now to enhance tomorrow’s world

Why we champion better health data re-use: real world examples 

Fighting COVID-19 with big data

Finding the best type of blood pressure drug for the prevention of heart attack and stroke

Better clinical decisions based on high-quality health data

Reimbursement for health apps with demonstrated data protection and interoperability

Best colonoscopy practices for earlier diagnosis of bowel cancer 

Discover why and how health data is crucial to boost knowledge

Our 6 core work streams

QUALITY OF
HEALTH DATA

Health data is often not fit for crucial reuse purposes such as clinical research, decision making, value-based health care. We therefore catalyse stakeholders to scale up their data quality, by coaching, educating and equipping them with instruments, organising assessments, providing insights and strategies to benchmark and enhance their health data quality, and providing expert support in all phases of the research lifecycle.

INFORMATION
GOVERNANCE

All organisations, and the public, need to trust the ways in which health data is used, and by whom. The General Data Protection Regulation (GDPR) has heightened our awareness of this. We have translated our expertise in data protection for reuse purposes into codes of practices, educational and certification programmes, which we provide to organisations and European projects.

TRUSTWORTHY
HEALTH ICT SYSTEMS

With more and more health ICT systems collecting and exchanging health data, we see a growing demand to demonstrate the trustworthiness of those systems. Using 1700 criteria and a standardised conformity assessment framework, we assess and certify the quality and governance of health ICT platforms.

DATA
INTEROPERABILITY
STANDARDS

Interoperability standards are vital to scaling up health data use, even more so given the rise of patient and citizen generated data. i~HD staff and experts have a long history of developing international health data interoperability standards, and their adoption into products and health ecosystems, connecting clinical information between silos to enable safer and more effective patient care, and big data research.

QUALITY LABELS:
CERTIFICATES & SEALS

Organisations handling health data want to provide assurance they do so in trustworthy ways. i~HD programmes offer audits for data, ICT systems, information governance and skills. As an independent institute, i~HD is best positioned to award quality labels to stakeholders that showcase their engagement, quality and accountability.

SCALING UP
THE HEALTH
ECOSYSTEM

We know that everybody needs to do more, and invest more, in health data through improved models of healthcare delivery, patient empowerment, and the development of innovative diagnostics and treatments. We help to stimulate this multi-stakeholder momentum to collect, curate, share and analyse data across care and research, for the benefit of all.

Let’s create trust

Our approach

Through our community and programmes, i~HD helps all players in the health data ecosystem by flexing our five muscles.

We convince

We convince everyone about the societally-beneficial uses of health data, about the need for high-quality data and how health data can be shared in acceptable ways. 

We connect

We unite stakeholders within our neutral forum to share needs and expertise, to co-create optimised solutions, to coach each player to assure their quality and increase their trustworthiness.

We create

We create innovative solutions and programmes, practical guides, educational resources and quality labels to support the creation, use, sharing and reuses of health data.

We certify

We assess the quality and trustworthy uses of health data  and we award successful organisations with seals and certificates. 

We  catalyse

We catalyse change and improvement through engaging multiple stakeholders in co-creating and then adopting health data usage solutions and programmes, education, peer networks.

Good data has the same value as a new drug! In the future a unique lifesaving decision will be taken for each individual patient on the basis of his own data.


Dr. Paul Stoffels
Dr. Paul Stoffels,
Vice Chairman & Chief Scientific Officer Johnson & Johnson

EAHM 2019 Congress in Ghent, 2019

Enriching knowledge and enhancing care through health data

News

One of i~HD’s founding members, Mats Sundgren from AstraZeneca, is the lead author on her recently published paper in applied clinical trials, regarding the innovative approach of the EHR2EDC project, in which i~HD has been a partner. Nadir Ammour, also an i~HD founder from Sanofi, is also an author, along with our President Kalra, and collaborators from an innovative ICT company.
i~HD and its community is so proud to inform you that our President Prof. Dr. Dipak Kalra was awarded with a Honorary Doctorate for his immeasurable effort and power in order to align all health data stakeholders in the re-use of the health data.
Following our two Round Tables last autumn, attendees were able to create 7 Calls to Action on Health Data Ecosystems.
2020 was a special year with the Covid-19 pandemic hitting our lives in many ways. Digital health information proved to be a crucial asset for clinicians, for the research community, for health authorities, for app developers and health-data-driven industry in general, and for patients, to understand, contain and contain the spread of the virus. Explore i-HD’s 2020 Annual Report to discover information about new programs, our EU-projects, conferences, and much more.
i~HD is a partner in the new EU research project HIPPOCRATES which aims at promoting early identification and improving outcomes for patients with psoriatic arthritis. i~HD has responsibility for ensuring robust data protection, data management and FAIR data sharing.
2020 was a special year with the Covid-19 pandemic hitting our lives in many ways. Digital health information proved to be a crucial asset for clinicians, for the research community, for health authorities, for app developers and health-data-driven industry in general, and for patients, to understand, contain and contain the spread of the virus. Explore i-HD’s 2020 Annual Report to discover information about new programs, our EU-projects, conferences, and much more.
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