Enriching knowledge and enhancing care through health data

«We need to accelerate clinical research to bring innovative treatments to patients more quickly»
Nadir Ammour
eClinical Director, Sanofi
Interview Nadir Ammour
We need to improve clinical research processes, to bring new drugs to patients faster and to be able learn about how the drug is being used. i~HD will help to ensure the trust of all parties involved in creating and using health data, especially patients.
Mats Sundgren
Principal Scientist, AstraZeneca R&D
Interview Mats Sundgren
i~HD can be as an advisor to future R&D projects, to by acting as a Centre of Excellence for the use of health data for research. It will be the driver for making health data more reusable, enabling the faster development of new medicines, bringing benefit to patients.
Colin McCowan
Professor of Health Informatics, University of Glasgow
Interview Colin McCowan
There's a huge need for greater interoperability of research data, so that health data can be better shared and better used to help speed up the delivery of new research results to patients.
Pierre Meulien
Executive Director, Innovative Medicines Initiative
Interview Pierre Meulien
i~HD can play an important role in addressing the challenges and growing the scalability of clinical research infrastructures. It is important to bring together all of the stakeholders involved in the lifecycle of discovering and applying new knowledge in healthcare.
«Trust, governance and good practices are key in using health data for learning and research»
Jeremy Thorp
Business Architecture Director, UK Health and Social Care Information Centre
Interview Jeremy Thorp
Defining the standards and rules for protecting the confidentiality of health data is a global challenge. Countries need to work together to share experiences, develop standards and good practices.
Nikolaus Forgo
Chair of IT Law and Computer Science, University of Hannover
Interview Nikolaus Forgo
The new General Data Protection Regulation will impact on the ways in which health data may be used, especially for research. i~HD can play an important role in standardising good practices, by involving different stakeholders including privacy protection officers.
«Good quality and interoperable health data are essential to improve health care systems»
John O'Brien
former CEO, St James's Hospital, Ireland
Interview John O'Brien
Health information systems need to be certified to ensure that these deliver the quality data that healthcare needs. i~HD will add significantly to the potential for hospitals to become involved in research and in learning from their data. Governance and quality labelling are important for this.
Peter Singleton
Cambridge Health Informatics
Interview Peter Singleton
Health care data, including data generated by patients, has to be held in trustworthy and well governed ways, which includes stewardship: making good use of the data, to inform and share good practices.
Terje Peetso
Policy Officer, European Commission DG CONNECT
Interview Terje Peetso
The European Commission is committed to interoperability and standards, so that eHealth adds value to healthcare services, and to patients. i~HD can play an important role in improving the collection, sharing and use of health data, bring together the key stakeholders.
«Engaging patients in their own care»
Mary Baker
past President of the European Brain Council
Interview Mary Baker
A better understanding of disease and new treatments is of critical importance to society. Patients and healthy citizens alike should support better uses of their health data.
Robert Johnstone
A patient
Interview Robert Johnstone
I fully support better use of health data for research, to discover new treatments and other forms of health care, provided that assurances can be given that the data are well protected and governed.
Petra Wilson
Director, Digital Health and Care Institute
Interview Petra Wilson
Patients need to be better informed about their health data and in decisions being made about their health and care. Patients' lack of knowledge limits the value we can all obtain from health data.