Health data is centre stage in many of the call topics for research and development projects and initiatives sponsored by industry and national eHealth and research bodies.
There is a burning need to collect, use and reuse health data for understanding disease trajectories, identifying trends, predicting evolutions, taking the right care planning decisions and accelerating research.
The health data challenges
This growing reuse of health data goes hand in hand with the growing awareness of the importance of
the quality of data
the interoperability and integrity of research platforms
good information governance practices
State-of-the-art innovation
i~HD plays a strong role in national and international R&D projects and European-wide collaborative initiatives.
We highly value participating in these projects and initiatives because it allows us to keep connected with the state of the art in innovative aspects of health care and clinical research.
The projects provide us with opportunities to put our services and expertise into practical scenarios, to learn, to improve and to expand our portfolio of health data solutions.
We are often invited to be a partner, providing expertise in many fields:
- data protection and GDPR compliance
- data sharing agreements
- anonymisation and pseudonymisation
- data quality benchmarking
- research platform quality assessment
- business modelling and sustainability
- dissemination and multi-stakeholder engagement
EC-funded Projects
We are a partner in a diverse range of European Commission-sponsored projects, in Horizon 2020, the Innovative Medicines Initiative and EIT Health.
Developing algorithms for the early detection of deterioration in advanced long-term conditions, well-coordinated care planning and integrated care to enhance quality of life
AFFIRMO: a multi-centre informatics driven clinical study to validate the effectiveness of a patient-centred, stratified care pathway for older patients with multimorbidity that includes atrial fibrillation
Automate Curation and Publishing of Personal Health Data through Artifical Intelligence
Development & harmonisation of methodologies for assessing digital health technologies in Europe
A scalable and sustainable medical image platform utilising Artificial Intelligence (AI) to improve diagnostic accuracy, and enabling there future development of AI algorithms
Large-scale generation of real world evidence for medicines safety in pregnancy and lactation, seeking to establish a sustainable Real World Evidence (RWE) ecosystem and stakeholder acceptance of RWE
Scaling up paediatric clinical trials across Europe, with a small part of the work plan for methodologies and tools including data management, standards and use of real world data
Facilitating the alignment of policies, strategies, instruments and activities to advance the uptake of digital health solutions and services in Europe
Developing a generic specification, methodologies, tools, governance and business models for Integrated Research Platforms (IRPs) = multi-company multi-drug trials. 4 disease area pilots
Developing trustable and explainable Artificial Intelligence for personalised decision making in patients with haematological conditions, combining clinical and genomics data from a European network
Improving patient acceptance, adherence and benefit from medicines by providing them with better and personalised information about their medicines and other health status monitoring
Establishing sustainable Health Outcomes Observatories at national and EU levels to collect, use and reuse outcomes to improve patient care and research. 3 diseases and 4 country pilots
Promoting early identification and improving outcomes for patients with psoriatic arthritis
Addressing Psychosocial and Lifestyle Risk Factors to Promote Primary Cancer Prevention: An Integrated Platform to Promote Behavioural Change
Improving clinical decision-making and enhancing patient access to health innovations through better use of health data
Championing Standardisation for European Digital Health
Developing a data quality and utility label for the European Health Data Space
Synthetic generation of haematological data over federated computing frameworks
Synthetic Data Generation Framework for Integrated Validation of Use Cases and AI Healthcare Applications
Supporting the adoption of ISO IDMP (ID of Medicinal Products) standards across Europe, supporting safer cross-border ePrescription, eDispensing and pharmacovigilance
Supporting the adoption of ISO IDMP (ID of Medicinal Products) standards across Europe, supporting safer cross-border ePrescription, eDispensing and pharmacovigilance
Expanding the European EHRxF to share and effectively use health data within the EHDS
Collaborative Projects
We are a partner in collaborative projects that largely have industry or industry association funding. These include the Multiple Sclerosis Data Alliance, Data Saves Lives and a project with EFPIA on heart failure outcomes data and value-based health care.
Collaboration co-ordinated by the European Patients’ Forum to promote the value of using health data to the public, sponsored by EFPIA, EIT Health, MedTechEurope
Data Alliance to promote greater collaboration and data sharing amongst multiple sclerosis registries and clinical centres, pharma sponsored through annual grants
VALUE-BASED HEALTH CARE
Automate Curation and Publishing of Personal Health Data through Artifical Intelligence
i~HD is…
…currently in projects making trustworthy use of hospital electronic health record information to improve the efficiency and quality of clinical trials, projects that are scaling up the generation of real-world evidence by networking multiple electronic health records and registries and other data sources
…involved in research projects focusing on specific patient populations, such as women in pregnancy, and patients with rare diseases
…working on societal challenges of improving healthcare, for example in patients with multiple long-term conditions, the collection and sharing of health outcomes data across Europe and the creation of a knowledge hub on mobile health programmes
Our experience in European projects
Via our founding members, i~HD can boast
i~HD expertise in R&D is built on a long history of participating in (EU-funded) projects thanks to its founding members EuroRec and RAMIT (over 100 R&D projects), strengthened by our large international community of experts. We have a lot of successful proposal writing and project co-ordination expertise.
Besides performing and supporting research, i~HD is able to assist research consortia in building sustainable models and solutions. i~HD is itself a successful sustainable outcome of EU R&D projects in 2016. Being a neutral European wide non-for-profit association, i~HD can disseminate project progress and its final results to multiple stakeholders active in the domain of health data.
Interested? Get in touch!
If you are planning a new project proposal, you are welcome to discuss the ways in which we could contribute with
Dipak Kalra.
