EU-funded R&D project

Advancing research on rare vasculitis

Health data LInkage for ClinicAL benefit is a training network comprising 17 academic and 9 non-academic/industry partners for early stage researchers in the field of Healthcare Data Linkage in the GDPR era. HELICAL will link research datasets with longitudinal healthcare records, based on a robust ethical foundation required for linkage studies using near-patient data, to address key experimental questions, using autoimmune vasculitis as a paradigm. Fifteen PhD studentships will be funded through this network.

 i~HD will host one fully funded PhD to conduct research to work for 3 years into the implications of GDPR for biomedical research using personal and genetic data, the role of consent in rare disease research and the appropriate safeguards for the pseudonymisation of genetic data. This project is funded through the European Union’s Horizon 2020 research and innovation programme (Marie Skłodowska-Curie grant).

Consortium partners

Adapt Centre, IBM, Trinity College Dublin, University of Glasgow, Kantonsspital St. Gallen, ISGlobal Barcelona, Instituto de Parasitología y Biomedicina “López – Neyra”, Consejo Superior de Investigaciones Científicas, University of Leeds, Anaxomics, IDIBAPS, Medizinische Universität Wien, TissueGnostics, KTH Royal Institute of Technology, Firalis, i~HD

Supported by