European collaborative project

In order to explore to what extent current systems can deliver the data that would be needed for a more outcomes-based care model, the European Federation of Pharmaceutical Industries and Associations (EFPIA) has launched a project together with i~HD to perform an assessment of how a selected sample of European hospitals collect data on Heart Failure outcomes.

Heart failure is a chronic condition with dramatic consequences for people’s quality of life that is estimated to affect more than 10 million people in the EU, also leading to around 2% of all health care expenditure. Collecting meaningful data on the health status of heart failure patients is an important step to ensure better quality care, and as a result better quality of life, for these patients. The project will continue to run through 2020-21.

How ready are European hospitals to evidence their outcomes?

Our role is to reflect wide-ranging background expertise about many of the challenges that lie in scaling up value-based health care, but with a special emphasis on clinical engagement issues and on the availability of relevant health data to provide evidence of clinical outcomes achieved by health care providers. i~HD will assess the readiness of 10 example hospital EHRs to measure health outcomes.

The benchmark for the exercise is ICHOM’s standard set for Heart Failure, which represents a global standard for the data that ideally should be collected, including patient-reported outcomes. The objective is to explore how much of the ICHOM standard set is routinely collected today in a sample of hospitals, and draw conclusions on what the gaps are and how they could be addressed.

How to address the gaps to accelerate a transition towards an outcomes and value based focus

A reference group with representatives of patients, clinical experts, hospital management and industry experts is providing advice to the project, including on the scope and deliverables, selection of hospitals and what data items to focus on.

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