All stakeholders need to collaborate in scaling up the learning from health data, working together to collect, curate, share and analyse data across care and research, for the benefit of all.
i~HD engages in many projects and initiatives that bring stakeholders together to realise their value in collaborating, and to work on specific projects together that harness the power of health data. i~HD joins dots across the whole ecosystem
Safeguarding data used for AI-powered care pathways supporting patients with advanced disease
Developing codes of conduct for big data projects
Defining best data protection practices for the research community
Harmonising data across disease registries
Data protection for genomic information
Developing a portal to share learning and practices in mHealth programmes
Bridging between research and healthcare standards
Certifying clinical research platforms
Engaging clinicians and industry in clinical data standards
Working with industry and regulators on evidence for the safety of medicines in pregnancy
Promoting a European ecosystem to collect and use patient outcomes
Applying the GDPR to rare disease data
Quality labelling electronic health record systems
Helping the public to understand why we all need to make more use of health data, its value and how this can be secure
Helping patients to understand their medicines and to take them regularly
Promoting an international standard for the identification of medicines
Assessing the quality of EHR data reused for clinical research
Promoting good practices in real-world evidence generation
Developing good practices in the use of mobile health applications