Enriching knowledge and enhancing care through health data

During the COVID-19 pandemic, we are delighted to see the initiatives taken by some of our members and colleagues to support this crisis by creating, or facilitating the creation of greater insights through health data.

 

Multiple Sclerosis Data Alliance: global data gathering and analysis

 

The Multiple Sclerosis Data Alliance (MSDA), of which i~HD is a founding member, has successfully initiated a global data gathering and analysis on MS patients having COVID-19. Liesbet Peeters, who heads up the MSDA, and her colleagues at the Multiple Sclerosis International Federation, have assembled a large, global population of data on MS patients with this virus, in order to better understand their disease susceptibility, the kinds of complications they may be most vulnerable to, and whether MS treatments have an impact on COVID19 outcomes.

This paper “COVID-19 in people with multiple sclerosis: A global data sharing initiative” describes the objectives and approach of the global data sharing initiative. There will be further papers in the coming months which present the detailed clinical findings.


Annual report 2019: Looking back to move forward

 
Looking back at the year 2019 we are happy to see how we have advanced our work on data quality assessment and on synthesising the emerging good practices in reusing health data in GDPR compliant ways. 

We have brought divers health data stakeholders together, and have started work on four new European projects, i.e. Helical, EU-Pearl, UNICOM and mHealth Hub.

Moreover, we engaged in three more collaborative projects related to Value Based Health Care, supported by efpia; public awareness, via the initiative ‘Data Saves Lives’ in partnership with the European Patients’ Forum, and information governance for the Multiple Sclerosis Data Alliance.

Last but not least, we are proud to say that we have more than doubled our in-house team, as well as expanding our network of European experts.

We kindly invite you to discover more about i~HD through our annual report 2019.

 


COVID-19: initiatives by some of our members and colleagues to support the crisis

During the COVID-19 pandemic, we are delighted to see the initiatives taken by some of our members and colleagues to support this crisis by creating, or facilitating the creation of greater insights through health data.

 

EHDEN's Rapid Collaboration Call

In this first video, Nigel Hughes, Scientific Director Epidemiology at Janssen Research & Development, and project leader at EHDEN (the European Health Data and Evidence Network) talks about EHDEN's collaboration call for data partners wanting to map their COVID-19 patient data. In this way EHDEN is applying the common data model beyond the usual scope of the project to COVID-19 for immediate public good.

 

More info on the EHDEN website

 

 


Our mission

The mission of The European Institute for Innovation through Health Data (i~HD) is to enable, coordinate, and accelerate the efficient development and deployment of interoperable and seamless eHealth solutions and research strategies, towards achieving best practices and sustainable integrated person-centred health care, to optimise health and wellness in Europe, and beyond. It aims to guide and catalyse the best, most efficient and trustworthy uses of health data and interoperability, for optimising health and knowledge discovery.

i~HD has been established to tackle areas of challenge in the successful scaling up of innovations that critically rely on high quality and interoperable health data. It specifically addresses obstacles and opportunities to using health data by collating, developing and promoting best practices in information governance and in semantic interoperability. It is helping to sustain and propagate the results of health information and communication technology (ICT) research that enable better use of health data, assessing and optimising their novel value wherever possible.

i~HD has been formed after wide consultation and engagement of many stakeholders to develop methods, solutions and services that can help to maximise the value obtained by all stakeholders from health data. It supports innovations in health maintenance, health care delivery and in knowledge discovery, while ensuring compliance with all legal prerequisites, especially regarding the insurance of patient’s privacy protection. It unites multiple stakeholder groups to ensure that future solutions serve their collective needs and can be readily adopted affordably and at scale.