Enriching knowledge and enhancing care through health data

COVID-19: initiatives by some of our members and collegues to support the crisis

During the COVID-19 pandemic, we are delighted to see the initiatives taken by some of our members and collegues to support this crisis by creating, or facilitating the creation of greater insights through health data.

 

EHDEN's Rapid Collaboration Call

In this first video, Nigel Hughes, Scientific Director Epidemiology at Janssen Research & Development, and project leader at EHDEN (the European Health Data and Evidence Network) talks about EHDEN's collaboration call for data partners wanting to map their COVID-19 patient data. In this way EHDEN is applying the common data model beyond the usual scope of the project to COVID-19 for immediate public good.

 

More info on the EHDEN website

 

 


Data protection questions during the COVID-19 pandemic

 

During the COVID-19 pandemic, digital health information is proving to be a crucial asset to help manage the current situation. 

We are pleased to announce that some of our members and the health innovation community are stepping in to help, using and/or contributing health data sets to better understand and treat the disease. 

We recognise this is a challenging time for handling data protection and research governance needs.

With longstanding expertise in the field of trustworthy health data sharing, we are here to support our members and partners needing advice on GDPR and Research Governance related to Covid-19 situations.

Depending on your needs and the resources required, we can shape our support to either assist you resolve your urgent questions, analyse more in-depth requirements or refer you to the most appropriate bodies. Do not hesitate to get in touch.


Our mission

The mission of The European Institute for Innovation through Health Data (i~HD) is to enable, coordinate, and accelerate the efficient development and deployment of interoperable and seamless eHealth solutions and research strategies, towards achieving best practices and sustainable integrated person-centred health care, to optimise health and wellness in Europe, and beyond. It aims to guide and catalyse the best, most efficient and trustworthy uses of health data and interoperability, for optimising health and knowledge discovery.

i~HD has been established to tackle areas of challenge in the successful scaling up of innovations that critically rely on high quality and interoperable health data. It specifically addresses obstacles and opportunities to using health data by collating, developing and promoting best practices in information governance and in semantic interoperability. It is helping to sustain and propagate the results of health information and communication technology (ICT) research that enable better use of health data, assessing and optimising their novel value wherever possible.

i~HD has been formed after wide consultation and engagement of many stakeholders to develop methods, solutions and services that can help to maximise the value obtained by all stakeholders from health data. It supports innovations in health maintenance, health care delivery and in knowledge discovery, while ensuring compliance with all legal prerequisites, especially regarding the insurance of patient’s privacy protection. It unites multiple stakeholder groups to ensure that future solutions serve their collective needs and can be readily adopted affordably and at scale.