#HDS25
High-quality data delivering tomorrow’s healthcare
NEWS
Revolutionising clinical trial research
SPOTLIGHT
i~HD launches LabelDigitalHealth Network
Health data has the potential to catalyse smarter health care and efficient research. We need to urgently ramp up our learning by creating and combining high-quality health data and advocating its trustworthy uses.
As a neutral, multi-stakeholder institute The European Institute for Innovation through Health Data strives to maximise community value from health data.
That is why we promote, develop and share good practices and tools and perform quality assessments.
We must learn from health data now to enhance tomorrow’s world
Interested to know more about i~HD’s latest activities?
Read the i~HD Annual Report 2023 to learn more about our newest projects, conferences and collaborations.
Why we champion better health data re-use: real world examples
Discover why and how health data is crucial to boost knowledge
Our 6 core work streams
QUALITY OF
HEALTH DATA
Health data is often not fit for crucial reuse purposes such as clinical research, decision making, value-based health care. We therefore catalyse stakeholders to scale up their data quality, by coaching, educating and equipping them with instruments, organising assessments, providing insights and strategies to benchmark and enhance their health data quality, and providing expert support in all phases of the research lifecycle.
INFORMATION
GOVERNANCE
All organisations, and the public, need to trust the ways in which health data is used, and by whom. The General Data Protection Regulation (GDPR) has heightened our awareness of this. We have translated our expertise in data protection for reuse purposes into codes of practices, educational and certification programmes, which we provide to organisations and European projects.
TRUSTWORTHY
HEALTH ICT SYSTEMS
With more and more health ICT systems collecting and exchanging health data, we see a growing demand to demonstrate the trustworthiness of those systems. Using 1700 criteria and a standardised conformity assessment framework, we assess and certify the quality and governance of health ICT platforms.
DATA
INTEROPERABILITY
STANDARDS
Interoperability standards are vital to scaling up health data use, even more so given the rise of patient and citizen generated data. i~HD staff and experts have a long history of developing international health data interoperability standards, and their adoption into products and health ecosystems, connecting clinical information between silos to enable safer and more effective patient care, and big data research.
QUALITY LABELS:
CERTIFICATES & SEALS
Organisations handling health data want to provide assurance they do so in trustworthy ways. i~HD programmes offer audits for data, ICT systems, information governance and skills. As an independent institute, i~HD is best positioned to award quality labels to stakeholders that showcase their engagement, quality and accountability.
SCALING UP
THE HEALTH
ECOSYSTEM
We know that everybody needs to do more, and invest more, in health data through improved models of healthcare delivery, patient empowerment, and the development of innovative diagnostics and treatments. We help to stimulate this multi-stakeholder momentum to collect, curate, share and analyse data across care and research, for the benefit of all.
Let’s create trust
Our approach
Through our community and programmes, i~HD helps all players in the health data ecosystem by flexing our five muscles.
We convince
We convince everyone about the societally-beneficial uses of health data, about the need for high-quality data and how health data can be shared in acceptable ways.
We connect
We unite stakeholders within our neutral forum to share needs and expertise, to co-create optimised solutions, to coach each player to assure their quality and increase their trustworthiness.
We create
We create innovative solutions and programmes, practical guides, educational resources and quality labels to support the creation, use, sharing and reuses of health data.
We certify
We assess the quality and trustworthy uses of health data and we award successful organisations with seals and certificates.
We catalyse
We catalyse change and improvement through engaging multiple stakeholders in co-creating and then adopting health data usage solutions and programmes, education, peer networks.