EPTRI - i~HD WEBINAR: “Unlocking the Potential of Real-World Health Data for Paediatric Clinical Research”

May 26
2026

More information

How can we make clinical trials more accessible, efficient, and patient-centred for children and families?

Join this webinar, co-organised by The European Institute for Innovation through Health Data (i~HD) and the European Paediatric Transnational Research Infrastructure (EPTRI), to explore how real-world health data can transform paediatric and rare disease research.

EPTRI i HD Health Data Webinar

Hear from leading experts in the field:

Patient perspectives included:

  • Valentina Jalby – patient representative, member of the TEDDY Kids Network and member of the Patient Expert Group (PEG) for the INVENTS Project
  • Karol Slowik – patient representative, member of the TEDDY Kids Network – POLPEDNET YPAG

Both will share valuable insights on the lived experience of participating in paediatric research.

In this session, we will:

  • Highlight the real challenges faced by children, families, and clinicians
  • Explore structural barriers in paediatric trial feasibility and recruitment
  • Show how real-world data can support the full clinical trial lifecycle
  • Present practical solutions including interoperability, governance, and eSource
  • Share what stakeholders can already do today

The webinar, designed for a broad audience, including clinicians, researchers, patient organisations, policymakers, and data specialists, will be interactive with an opportunity for the participants to contribute actively to the discussion.

Let’s move from challenges to actionable solutions together.