Below is a list of case studies. Please click on the title link to learn how the analysis of health data has contributed to gaining valuable insights. 

TitleDisease AreaObjectivePrivacy Protection (*)SourcePublication date
Influence of Early Childhood Burns on School Performance: An Australian Population StudyChildren's healthRehabilitationDe-identifiedPHRN22/06/2022
Using data linkage to
battle cancer
CancerPrevention, treatmentDe-identifiedPHRN22/06/2022
Third born: How linked data
revealed who to target in
vaccination campaigns
Children's healthPreventionPHRN22/06/2022
Linked data in the fight
against COVID-19
Infectious diseasesPrevention, planningPHRN22/06/2022
Statin use and joint symptomsCholesterol/ArthritisPreventionInformed consentPHRN22/06/2022
Does infant feeding method impact maternal mental health?Mental healthPreventionPHRN01/05/2022
The ALASKA Study: Improving patient use of continuous positive airway pressure (CPAP) treatment in FranceRespiratoryTreatmentAnonymisedResMed01/02/2022
No increased risk of rare neurological events after COVID vaccinationInfectious diseasesPreventionAnonymisedEhden15/01/2022
Broadening clinical trial eligibility criteria increases real world applicabilityManyManyManyDSL15/01/2022
Finding the most effective blood pressure drug for the prevention of heart attack and strokeHeartPreventionAggregated dataDSL15/01/2022
Disproving the link between the MMR vaccine and autismAutismPreventionDe-identifiedUPD15/01/2022
Monitoring joint replacement surgeryOrthopedicsTreatmentDe-identifiedUPD15/01/2022
What are the best treatments for breast cancer?CancerTreatmentPublic taskNDRS15/01/2022
Chronic Obstructive Pulmonary Disease and self-managementLungEngagementUnnecessary (sharing individuals' own data with them)UPD15/01/2022
Finding treatments for Covid-19Infectious diseasesTreatmentPublic task with patients' consentUPD15/01/2022
Smoking bans and pregnancyManyPreventionDe-identifiedUPD15/01/2022
Improving new born screeningPediatrics
PreventionDe-personalised (not completely anonymous)UPD15/01/2022
Factors that influence treatments and prevention of diseaseManyPrevention, treatmentInformed consentUPD15/01/2022
Exploring trends in diabetesDiabetesPreventionInformed consent, de-identifiedUPD15/01/2022
Renal Dialysis Treatment in the UKRenal diseasesTreatmentDe-identifiedUPD15/01/2022
Exploring the links between Hodgin Lymphoma and breast cancerCancerPrevention/TreatmentInformed consentUPD15/01/2022
Risks and benefits of diabetic drugs associated with bladder cancerCancer / DiabetesTreatmentDe-identifiedUPD15/01/2022
Learning about blood cancersCancerDiagnosis/TreatmentPublic task / Informed consentUPD15/01/2022
Can the weather affect pain perception?ArthritisLife styleAnonymisedUPD15/01/2022
Air pollution and healthManyPreventionAggregated dataUPD15/01/2022
Understanding hip fracturesOrthopedicsTreatmentPublic taskUPD15/01/2022
Using Statins in men without a history of heart attacksHeartTreatmentInformed consentUPD15/01/2022
Suicide preventionManyPreventionDe-identifiedUPD15/01/2022
A link between Body Mass Index and non-alcoholic fatty liver diseaseLiverPreventionAnonymisedDSL15/01/2022
A new method of predicting diabetes-related chronic kidney diseaseDiabetes / renal diseasesPreventionAnonymisedi~HD15/01/2022

Sources

The following organisations have kindly provided case studies for our library:

i~HD is a partner in Data Saves Lives, an initiative led by the European Patients’ Forum to convey to the public how health data can contribute to gaining insights that lead to improvements in the quality and safety of healthcare, and can accelerate research leading to novel treatments, medical devices and software such as artificial intelligence.

(*) Privacy protection: definitions

For a clear understanding of some of the terms we use, we refer to a glossary of terms used in the health data community we collaborate with. This glossary is shared with some of our European projects, who are collaborating with us to help grow this, as a useful resource for all.

Interested in more information on data protection for a non-specialist audience?

Head over to the data protection section on the Data Saves Lives-website.

This section of our website presents examples of the ways in which data has been used. We do not intend to give indications of how care has to be organised for individual patients.

i~HD